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Healing is Never A Linear Journey – Breaking the Cycle of Domestic Violence

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*Contains Graphic Details of Abuse* For the people who have spent a lifetime being told you are too much, yet you still aren't enough, I entirely understand the struggle to believe you are indeed enough. Our childhoods shape and mold us into the person we become. Some upbringings are destined to lead us to success, while others are destined to lead us to pain and failure. I know, we all have free will. As grown adults, we cannot blame our failures on our parents or their lack of parenting. However, children learn what they live. When you are raised to believe you are worthless, somewhere along the way, you are going to believe you are worthless. And believe me, shaking off that shroud is no easy feat, but when a victim finds her voice and uses it, she ceases playing the role of victim. She becomes something much more dangerous—a threat. A threat to all who benefit from her compliance and silence. In time, a victim learns not just to survive, but to thrive. Each year, October 1 mark...
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Disability Pride

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  Can you imagine living your life being judged and discriminated against for the thing about you that makes you different and vulnerable? Thirty-five years ago, the Americans with Disabilities Act was enacted. July is designated as Disability Pride Month. It's a time to educate the public while promoting inclusion and accessibility for individuals with disabilities. I wasn't sure where I wanted to go with this topic, but two separate incidents this past year have taken up too much residency in my mind. One of them I wrote about in detsil a few months ago. Now it is time to expel these lingering thoughts the best way I know how. You travel this journey long enough, and you develop a thick skin. However, that tough exterior doesn't stop the frustration when your child is consistently bullied or excluded because their abilities, or lack thereof, are not the norm. It's been our experience that many individuals who are eager to embrace diversity and inclusion don't want...
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It's Just Love

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  I navigated this past year learning to function after losing pieces of myself. It happened all at once and a little bit at a time. How do you grieve someone who was just as much a part of you and your life as he wasn't? Early on I read, there is no gone without goodbye. I felt those words deep within my soul. He isn't really gone, he is just living his life without me in it. I had already learned to live my life that way, so it was comfortable. Easy, almost. Or was it? Today, I read this as we finally laid my father's remain to rest. I want to thank all of you for loving my father, Sue, and me enough to be here. Even if there were moments that the emotionally stoic teddy bear that was my father didn't outwardly show it, each of you meant something to him.  These past four months have felt surreal. When someone we love dies, it seems like the world should stop or at least pause to give us time to process and catch our breath. Instead, everything feels like it is moving...
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Believing the Invisible

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My daughter and I are all too familiar with rude looks, glaring stares, and insensitive comments. The cause? A handicap placard, Jayde-Rhiannon in her wheelchair, boarding first on an airplane or skipping the line at amusement parks. My favorite retort to the insensitive, aggressive comments is, "And you don't look like an asshole, but that just goes to prove you can't judge a book by its cover." My retort tends to stun and silence the ignorance long enough for us to escape. Yesterday, I was excited to meet four childhood friends for lunch. We started meeting up a few months ago. One of the women I've known for more than forty-five years. We are all on our way to becoming empty nesters. Although I am functioning on minimal sleep, I don't care. I am dressed and comfortable in my own skin. Or I was, until I heard a shrieking scream from Jayde, only to discover a fiasco with one of our cats. Fifteen minutes later, the crisis is handled, but now I need to quickly ...
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World Autism Day

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Though they are seventeen years apart, from the time he was an infant, my daughter Jayde-Rhiannon and my nephew Stephen shared an undeniable connection. As Stephen aged, the pieces of the puzzle began to slide together. It has been over twenty-five years since my son Brady was in Kindergarten, and I began volunteering in our school district. In that time, the world of Autism has come so far. There was this little girl I regularly worked with. Not long into the school year, I remember asking her aid what she was diagnosed with. She brusquely responded, "We don't know. She is a tough nut to crack." The aid's response saddened and angered me. I quickly informed her that the idea of any child being described this way was unacceptable.  When Jayde began Kindergarten, there were a few autistic children in her class. Two of the autistic classmates were sweet and responsive, while one was primarily nonverbal, headstrong, and occasionally combative. I quickly understood I coul...
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Life's Tiny Puzzle Pieces

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Over the last eighteen months, I came to honestly know a man I could only dream of having in my life—my Dad. Finally, he wasn't just the Dad I wanted, but the Dad I needed. He had come and gone too many times. Now, it didn't matter why he had returned to our lives. It just mattered that he did. Through our countless hours of conversation, I finally understood why he was the man he was, which made coming to terms with our sometimes volatile relationship much easier. Yesterday, my Mom said, "Take time to process and feel what you need to feel." I told her, "I need a month or two alone in a tiny, secluded beach town where I can just listen to music and write." I've been through enough death and grief to understand that the process is anything but linear. This past week, going through my Dad's things has been a rollercoaster of emotions. He saved everything. At first, it was almost annoying, but I couldn't find it in me to be annoyed—only sad.  I kno...
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Until we Meet Again—Dad's Eulogy

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The day after finding out my Dad had passed, my best friend checked in on me, "How are you holding up?" My answer was simple, "I'm not." I told him, "I am blocked. I can't write." A few minutes later, I scrolled through my music library and found my muse—the words and music of David Gilmour and Rodger Waters. As the music of Shine on You Crazy Diamond began, the tears and words magically flowed like a fountain. Today, we celebrate and remember the man, the myth, the legend—my Dad, Bill Garrett. My Dad was an enigma. Quirky even. He marched to the beat of his own drum, living life on his own terms—even until the very end. I've met many stubborn individuals in my life, but I can unequivocally say he was the most headstrong, stubborn person I ever knew. It was a blessing and a curse all in one. We often laughed about nature vs nurture and our shared traits. He was proud to claim he generously shared that headstrong trait with me and his grandchild...
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My Dad

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Today, I received a phone call that no amount of time could prepare me for. We often laughed about nature vs. nurture. He gave me a passion for music and concerts. "If you aren't in the first few rows, you might as well stay at home and listen to the radio." Dad, you gave me my stubbornness and your smile. I will miss our three-hour minimum phone calls, being able to talk about everything and nothing at all, your pearls of wisdom, your stories, and your sense of humor. Your laugh was the best. I love you, Dad. #ForeverYoung #MyDad
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Pride in Disabilities

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  July is Disability Pride Month, commemorating the Americans with Disabilities Act (ADA) that was signed into law on July 26, 1990. Until a decade ago, I took this law for granted. Sure, I had heard of it, but I was unfamiliar with its content. Inclusivity and accessibility are something most healthy individuals take for granted until they break a leg or need surgery. Then, the doors to a world of accommodations you pass by daily without consideration open. Our children are born, and we imagine what their lives will be like. Who will they become? What kind of hobbies will they enjoy? What types of friends will they have? What profession will they gravitate towards? You envision the places they will go, the things they will see and do along life's journey. In the end, none of it matters, only their health and happiness. Except what happens when health is not a part of life's plan? You begin to grieve the dreams you once had. Then you grieve for the dreams your child held dear t...
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Rare Disease Day 2024

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  It's funny how ten people can hear the lyrics to the same song and interpret the words ten different ways. The first time I heard "Footprints on the Moon," I sobbed. The only person or thing I could envision was Jayde and her journey. I look at these pictures and am abundantly thankful for how far she has come. Still, I carry a hope that the brilliant doctors will soon discover the genetic links necessary to crack the elusive code, changing the face of medicine and our lives. I understand how fortunate Jayde is to have been placed with Johns Hopkins Children's Center. My immense gratitude for the few doctors who made it possible to still see those bright green eyes every day never wanes. To the average person, Rare Disease Day is just another day, yet to our family and many like us, it is 365 or, in this year's case, 366 days a year. There was a time when I heard the word rare, and my mind immediately thought of something beautiful, special, and unique. Anytime ...
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SMAS Day 2024

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Today is purple day in the Jackson household, but not because the Ravens are playing. Today is SMAS Awareness Day. Each year, I try to give a glimpse into Jayde's journey with this disease. Superior Mesenteric Artery Syndrome. What can I tell you that you haven't already heard? SMAS is so much more than nausea, pain, vomiting, and weight loss. This disease is relentless, it's frustrating, and it is heartbreaking. That is on a good day, and I am only the mother and caregiver. Yes, those are two very different roles, and I will be the first to admit that on the bad days, I find it challenging to figure out where one begins and the other ends.  About a week ago, I told a dear friend, "If I don’t answer when you call, it's because I am having trouble getting my arm out of the straight jacket."  The culprit of my most recent spiral into madness—Jayde's port. Along with her many illnesses, Jayde has Factor V Leiden Mutation. This is a genetic mutation that cause...
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